The California Collaborative for Long Term Services and Supports has kicked off its 2019 advocacy on behalf of Californians who use long-term services and supports (LTSS) with a letter to legislative leaders outlining critical priorities for the upcoming year.

She was our first, our dream-come-true baby, our patient teacher. Livy was born with Schizencephaly, a rare neurodevelopmental disability characterized by global delays in gross and fine motor skills, cognitive functioning and speech.

We must continue to speak for those who are vulnerable, aging or disabled. We are going to build our relationships, explain our community’s needs and hold Legislators accountable. And we will definitely be back.

Along with her other responsibilities, Emily travels two hours from Santa Rosa to Sacramento many times each month to accompany her father to medical appointments and oversee his care.

Most people believe that existing health insurance, and certainly Medicare, covers the cost of services and supports needed by people who can no longer perform activities of daily living, such as dressing, eating, toileting, or getting around. It doesn’t.